Abris Bery-Janusko was born in 31th of July, 2016. He is a cheerful, smiley baby. He was diagnosed by a genetical test result with SMA 1 type at 8 months. This is a spinal chord malnutrition which cannot support life. In 80% of cases, children do not live to the age of one. Our one hope is a medicine called Spinraza, which was authorized in the US in 2016. The price of one injection is 100.000 Euro. It is impossible to pull that money out of nowhere.
Thank you for taking the time to read our story. Donations of any amount will mean the world to our family, and most importantly Abris.
BJÁbris Alapítvány – Erste Bank