Abris Bery-Janusko was born in 31th of July, 2016. He is a cheerful, smiley baby. He was diagnosed by a genetical test result with SMA 1type at age 8months. It's a spinal chord malnutrition which cannot support life. In 80% of cases, children do not live to the age of one. Our one last hope is a medicine called Spinraza, which was authorized in the US last year. The price for the first year of treatment is $750,000. It is impossible to pull the money for it out of nowhere.Thank you for listening to our story. Donations of any amount will mean the world to our family, and most importantly Abris.
BJÁbris Alapítvány – Erste Bank