The Ministry of Human Resources has published a new directive on SMA. I am very proud that the  SMA Hungary Foundation and myself personally were able to contribute to the process to help put together an up-to-date material. Based on this, in the future- hopefully – Hungarian SMA patients will receive a more competent and all around better care. In the meantime with a member of the foundation we are working on a prospectus for patients that will plainly and briefly contain the key information on the disease.